Well Everyone this is my first Blog!!! I’m alive after my Heart operation in Sakikibara Heart Clinic in Chofu. That’s my sister Kutani beside me – she finally gets to be beside me and hold my hand. Daddy and Mammy are here too with my Auntie Nu Nu.

起死回生 “Wake from death and return to life.”
“Good grief Daddy stop with the quotes, I’m Alive! I’m Alive! Look out world here I come!!!”

Over the years my Blog will hopefully help others like my Daddy and Mammy and give hope that all is not lost. Keep coming back because my blog will highlight the many obstacles in Japan that parents with a kid like me can face. My club as it develops will I hope help educate, inspire and most of all alleviate hardships for Children like me and everyone around us.